Tetrabenazine For Tardive Dyskinesia
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Anyone have any experience with treating TD with Tetrabenazine?
Answer:
I have TD and see a neuroolgist for botox shot inside my mouth it stops the movement but only last 3 months thanky o I will look up Tetrabenazine I've already researched it. I was looking for first-hand experience. In my version of TD, it's not the lip movements that bother me, but rather the "Bronx Cheer." Every exhalation is forced through pursed lips, as if I were giving a Bronx Cheer, AKA a "raspberry." Don;t know as botox would help that, though maybe it would relax the pursing of the lips. Do you get any periods of relief? Mine starterd last July but wasn't diagnosed until November, at which time I got off the Seroquel. The symptoms virtually disappeared for ten days, but then came back and have been off and on ever since, mostly on. I get a break sometimes, from a few hours up to two days. I also get relief by lying down, reclining in a recliner, or holding something in my mouth, like gum or a lollipop. I smoke a pipe, so sometimes keep a small, light pipe clenched in my teeth, but that's starting to make my jaw hurt. Some time in the 1990s a psychiatrist called Krysztyna Mandelman told me I had "rabbit mouth," which is a rapid twitching of the upper lip. She advised me to take Vitamin E and it worked. It wasn't until 2006 that a highly experienced psychiatrist named J.J. Jeffries clarified things for me. There is no such thing as "rabbit mouth." There is rabbit _syndrome_, which is an early symptom of Parkinson's Disease. He said I didn't appear to be in the early stages of Parkinson's--a huge relief to me--and my mouth movements were actually tardive dyskinesia. My TD is mild enough that usually only a trained observer is conscious of it, but unconsciously most normaloes notice it and become frightened that I'm a "weirdo." This is especially true of women, who have an instinct to avoid "weird" men because we might make eccentric and physically harmful sexual demands. (Which has nothing to do with women as thinking beings, but on the instinctive level we're all animals.)
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